Published on Jun 6, 2017
Maddie
suffers from Zellweger Syndrome. A terminal, genetic disease that
destroys the white matter of the brain. According to the national
institute of health most children with this devastating disorder do not
survive past their first year of life. Maddie is 4 years old. April 10,
2015 at 2 years old, Maddie's medical team had ran out of options.
Little Maddie was on 26 pharmaceuticals, on hospice and a do not
resuscitate order was placed. Desperate for something to ease her pain
we discovered full extract cannabis oil and returned to the hospital
expecting her short life to come to end. It is now two years later and
she is off hospice, stopped having grandmal seizures, is on 4
pharmaceuticals and continuing to improve. Here, you will see as I stop a
seizure within minutes with a THC-A Isolate. Madeline has gone 86 days
without a benzodiazepine PROVING that THC CAN STOP SEIZURES! In this
video I also want everyone to take note of where we are. Not at home. We
are in the emergency room at Seattle Children's Hospital. I NEVER have
and never will hide Madeline's cannabis medicine from her providers
because it is crucial to her care. I am completely open and honest about
dosing, administration, cannabinoid content. Through positive
engagement, by reminding her providers that I am a critical member of
her care team they listen. Imagine being in their shoes. Imagine telling
a family, it's time to start making end of life plans, we are out of
options. Imagine that same child coming back to the hospital off of all
those drugs you knew she would die on? Imagine watching cannabis save a
life? I advocate for cannabis patients and the providers who are
desperate for research. By educating my daughters medical team, showing
them cannabis works, they support us. They uplift us, and they accept
cannabis as a part of her care even when being admitted. PLEASE SHARE
AND HELP EMPOWER OTHER PARENTS TO STAND UP!
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